People with disability are the most vulnerable and
marginalized group of people. They live in isolation,
segregation, disparagement, poverty and virtual dependence
on charity and even pity. They are the victim of the
community misconception and stigmas denying them of their
inalienable and recognized rights. As a result, they shut
themselves from the world and they underestimate themselves
thinking that they do not fit in the society like other
able-bodied children.
Thus, it becomes a painful reality how there is limited
involvement or we can find no involvement of their parents
or guardians in formulation and implementation of the
policies related to them. In addition, the programs
introduced by the Government have not benefitted them much.
Therefore, non-governmental organizations have been
providing care and different needed support activities
targeting people with disabilities.
Conflict Victim and Disable Society (CVDS-Nepal) is one of
these non- profit organizations located at Shankarapur
Municipality-6, Shalambutar,Sankhu,Kathmandu.This
organization has been devoting unceasingly with the aim of
supporting the people with disability in Nepal since 2005.
The organization has been providing food, clothes, shelter,
basic care and support to till date mentally and physically
disabled children through the ‘Rehabilitation Center for
Children with disability due to Cerebral Palsy (CP)’
project.
Children with disability due to Cerebral Palsy by making
them capable enough to lead an independent life thereby
mainstreaming them towards national development.
The mission of CVDS is to create pathways for the progressive removal of societal bias and the negative stereotypes that exist today.
I am Yub Raj Thapa born in 23rd march, 1973 in Hasanpur VDC,
a remote place of Bhojpur district, Nepal. I am the second
child among 6 children (4 sons and 2 daughters) of my
parents. I was not only an active and curious sibling but
also very good in study. My schooling was started from SHREE
JAN SEVA LOWER SECONDARY school which was located nearby my
house. I often stood first in study in the classes. After I
passed class 7 I had to go four hours far from my house on
feet to pursue my further education since we did not have
high school in our village. When I was admitted to Shree
Sagarmatha SECONDARY SCHOOL that time I was only fourteen
year old. It was only me going that school from my area
which used to lead me going alone finding school friends
from only the middle of the path. I used feel often fear
going through the jungle and hill where there were many
dangerous animal like tigers and beers. due to fear I used
to carry a stick with me from my home thinking I could be
safe and secured with it. I would not even get money to have
my lunch and snacks going to the school. Struggling through
hunger, tiredness and thrust coming back home from the
school was my normal phenomena. ALTHOUGH my family had
enough resource providing a pocket money, I never got money
to have my food caused starving time and again. However, I
continued my study and passed grade 8.
While I was studying in grade 9, unfortunately I developed
pain in my backbone. The paining situation went worsen than
the worse day by day. I ended up going to school. In remote
place, WHERE traditional belief and superstition were highly
rooted in the villages in those days. As advices received
from our neighbors and friends my family took me to
traditional healers for my treatment. They began to take me
to them daily-sometimes, one after other persons.
Innumerable chickens, Pigeons including vegetables WERE
SACRIFICED BUT IT DIDN’T help changing anything in my
condition. The more I was taken to traditional healers more
my condition got worsen.
The reason that I was not taken in to hospital for treatment
was strong belief that hospital could not treat such type of
disease, cost and distance associated with it. Until then
the disease attacked acted more severely. The part of my
body over my knees and below my waist started paining. The
process to take me to traditional healer didn’t stop so I
began to take a stick for walking. After some days my right
leg also stuck moving. Then I was in a condition not able to
move from a place. When I became paralyzed from moving just
sitting in a particular place then only I was carried by a
potter up to the place where bus service were connected . My
father took me to a private health clinic in Biratnagar,
Morang district for treatment. Later IT CAME IN MY KNOWLEDGE
that the health clinic was the aryurbhadhik clinic. The
doctor gave us some ayurbeddhik medicine saying the medicine
would work well. I would have recovered by ninth month by
taking the medicine as prescribed. So we came back to home
with this medicine and the advice given by the doctor. I
returned home carried on a basket by a potter. With the hope
of recovery and the relief from the disease, I used to take
medicine routinely but the effort went in vain as I couldn’t
fell any improvement in my bodily condition. Again I put a
proposal fourth requesting my family member to take me to
another hospital but the proposal was not heard at all .This
situation invited conflict and quarrels everyday between my
father and me. I was almost tired with my situation and
behavior showed by my father. Finally I decided to suicide
myself taking poison. It was the month of July, my father
and mother had gone to terai (plain region) to tilde the
field and plant the rice. One day, I was with my six years
sister who didn’t know what poison was and it worked for.
Getting advantage of her innocence I asked her to purchases
four pockets of rat killing poison from nearby shop. The
poison was stirred in a glass with water and kept it under
my pong. I wrote in a paper the agony and givens to wards my
family and reason of my decision of suicide and kept it
under the pillow. I HAD WRITTEN IN THAT paper that I wanted
proper treatment and recover in addition to continue my
study and do good thing for the society and my family
itself. But my dreams couldn’t be fulfilled. My condition
happened to be worsening day by day .therefore I thought
leaving my family, friends, relatives and leaving the whole
world would be the best freedom for my soul and body. Indeed
I had a intimate friend in my neighborhood with whom I often
shared my feelings and emotion. He was out of the village at
the moment. I wanted to say my last words to him before
swallowing off the poison after a couple of days upon his
arrival in the village. However, in main time there was a
lot of impulse occurring in my mind. In other words, my mind
was out of order-I could not sense out well time and again
what I spoke out. During this situation, this very secret
development was spoken with one of my brothers. One of the
neighbors has been informed about the development of mine.
He came to me. We had begun the dialogue. During our
conversation I said I was hanging at branch of banyan tree.
The root of the tree was cut by the mouse. The tree would
fall soon. There was a den under the tree. Inside the den
there was anaconda sitting looking at me with opened mouth
to eat me away. I would fall soon and would be eaten by the
anaconda. Neighbor said if I fell in the mouth of the
anaconda you would be eaten and would be nice. But if you
were fallen other side not at the mouth of the anaconda,
then situation would further worsen. Means I would not die
through the poison. Then, I realized it might not be the
good decision. So I relinquished the idea of the being dead
poisoning myself. I replied him positively saying I would
not take poison. With this development I was not interested
to speak to him further. He kindly advised to throw the
poison away and burn the note I had written which done
accordingly. The plot ended leaving only one more
alternative to venture to Kathmandu for treatment and
continue the study. But I didn’t know anything about
Kathmandu. To know about it I sent a letter to radio Nepal,
only a nationwide radio station functioning in those days,
asking a question in one relevant radio broadcasting
program. My letter was read in the 19th day I had sent it.
When I heard my name with my detail address I was so
surprised and thrilled. although I had the radio set quite
functioning with me I did not listen my question answer
myself directly. When one of the neighbors told me that my
question was answered then only I came to know it. They told
me that I was suggested to contact Kathmandu Social Welfare
Council which would help me. I thought I should go to
Kathmandu then but neither did I have money nor I would get
help from the family. But I thought to try once asking my
father thinking he might agree fulfilling this desire.
Hoping I might be able to go to Kathmandu I told him, if he
would take me to Kathmandu I would continue my studies apart
from improving the physical condition. But he said to me
(other son who are fine and have leg didn’t study how will u
having no leg study). He also said that to invest money for
my studies is like throwing the money in the river. Now I
brainstormed what to do. How would I go to Kathmandu
achieving my final destination? Thinking like it I bought a
chicken and it started growing being bigger day by day and
begun laying an eggs and hatching it producing chicken. The
process kept on continuously being a good source of earning
money by selling them. Apart from chicken I even learnt to
play cards inviting people in my house frequently and I
didn’t feel alone, too. Playing card was for entertainment
as well as gambling. This turned like a good business in my
case thereby winning the card earning a 10 to 15 rupee
daily. The friends who used to play with me used to say in
half way joking manner that "we feel jealous to give you
money directly so we are giving you through playing
cards."At that time I was able to meet Mr. Balkrishna rai,
then leader of Nepal who was from my district. He had come
to my house in a connection of his political campaign. I
talked with him about my problem and longing to go to
Kathmandu. He promises to take me to Kathmandu with him .as
he promised finding a good luck day we thought to go to
Kathmandu. We searched for a potter. That time my father had
gone to terai to harvest the paddy. So we send a message to
him writing "your son is going to Kathmandu and if you love
him then come home. When my father heard the message this
time he immediately came home and we both together went to
Kathmandu. When we reached Kathmandu then firstly we went to
Bir hospital, one of the oldest government hospitals, where
the doctor examined me and told my father to do CT scan
which I did not understand properly. But I was told by
saying that my disease couldn’t be cure then. Then I went to
Khagendra New Life Center, the first residential
rehabilitation center for the persons with disability in
Nepal located at jorpati, Kathmandu. But there was no place
for my accommodation. At the same time I heard that there
was a health camp being organized in Nepalgunj (Mid West
Nepal) providing free assistive devices for the needy
disable people. So I requested my father to capture that
opportunity I wanted wheelchair easing my mobility. My
father responded conversely saying to go to Kathmandu
solving your problem. When we came here you are saying to go
to Nepalgunj and when you will go there you may say to go to
India. You may finish the little property that I have. We
also need to live and your brother, sisters also need to
live.) With this statement he returned back to Sunsari
District, eastern, Terai where he had owned some land
several years before leaving me alone in Kathmandu.
BAL Krishna Thapa, then Leader played my hotel cost and
purchased a bus ticket and send me to sun sari district.
When I reached there again I requested my father to take me
to Nepalgunj. Then he agreed to take the ticket to by bus
tickets to Nepalgunj. When he went out of the house, the
neighbors' told him "your son will waste all your money, if
you follow his demands" so he returned back. When he
returned home then I scold him and a quarrel began. I
scolded the neighbors saying" if u can help then help me if
u can't then don’t stop others". After then my father again
went to take the ticket and we went to Nepalgunj finally.
I collected one wheelchair from the health camp. We came
back Sunsari with that wheelchair for me. With help of the
wheelchair I improved my mobility there. I admitted a local
school and continued my schooling smoothly. When my School
Leaving Certificate (slc) examination was over, I was alone;
my father had gone to village during those days. so taking
advantage of this time I sold 2 quintals of rice and went to
Kathmandu with my younger brother, prem Thapa lying that we
would be going to visit Kathmandu. In 3 days journey we
reached Kathmandu. After reaching here, WE visited to one of
the organizations working for the rehabilitation of the
persons with disability where medical treatment facility to
was available. TO examine myself quickly I requested the
phisio therapist, krisha Gurung. But he refused admitting me
saying that I would wait more 3 months for my turn. Then I
stayed outside with sadness cursing my fate. In the main
time,
I had seen the visitors coming there would greet the staff
by saying (Namaste) and how are you and so on. In return,
the welcoming behavior from staff would be showed. But I had
just come from village, became shy, didn’t know to say
namaste and so forth. Might be it was the reason why the
staff didn't come in front of me and didn’t talked with me.
so I thought I must be proactive-saying Namaste, how are you
ETC. then I told Namaste to one of the foreign volunteers,
then she also Replied it and came near to me, sat near me
and asked me what was my problem. Then I turned out my story
and told that I did not get admission in the hospital. Then
immediately she went inside and brought the phios therapy
out and requested him to take my admission then krisha
Gurung accepted her request and admitted me for 6 months. I
thanked her so much. Then my phisio therapy begun and within
3 month I was able to move a little. They were also happy
and slowly were improving. The result of slc exam came out.
I knew that I was fail in English subject. With this result,
I did not lose my hope and efforts. So I reappeared the exam
too next year and passed SLC, an iron gate for a carrier
development here in Nepal. While I completed course of
phisio therapy, I engaged to paid work in the same
organization to earn little money. I admitted a college
nearby to continue my education. But seeing me a disable the
public vehicle would not stop while going to college, I use
to fall a lot when getting into the vehicle. Fighting this
situation I was able to continue college level study for 3
years. Then after due to my technical problem I was
compelled to discontinue the study. Then we few friends sat
together discuss to establish an organization to be run by
ourselves. We were able to establish an organization named
conflict victim and disable society. This organization has
been registered with the local government of Nepal under NGO
registration Act. Soon also affiliated with social welfare
council's started working as the founder president .in the
same year I had an intercaste marriage to very generous
lady. A year after we were lucky to have a baby boy. Now he
is studying in class 9. ( but corana is distrub now.. he is
in home. We realized there are children and adult with
intellectual disability and multiple disability severely
deprived from opportunity living in a very pathetic
condition everywhere across the country. Where will there is
is a way. We began this work. Now we have been providing
orphans left in the street, kept in house without providing
basic facilities and other orphans. We have run a
residential rehabilitation facility. A team of 9 staff and
staffs have dedicated to support this 50 children till date
providing necessary care and support - rendering phisio
therapy service, regular health check up from doctor
,special education classes ETC.
I would like to end my autobiography here appealing all of
you for your generous support to lifting thousand of the
persons with disability and people living in extreme
poverty, hunger, illiteracy, capacity building training and
health treatment in our communities. Being a social worker
myself With a strong determination and conviction, through
my organization I would like to concentrate and focus
promoting the livelihood of 1000 persons with disability and
marginalized people in life time period .Certainly we are
nothing without begging your hands and heart with us.
Thank You.
Yub Raj Thapa
President
Conflict Victim and Disable Society-Nepal
Shankharapur Municipality- 6,Shalambutar, Shakhu, Kathmandu,
Nepal
Tel:9851160868/9841360868
Email: [email protected]
Facebook: cvdsnepal/yubraj thapa bairagi